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Improving Outcomes for iGBS Patients and their Families through Health Research
What is the COMPPASS Registry?
The Comprehensive Outcomes Monitoring for Peri- and Postnatal Invasive Group B Strep Sequelae - COMPPASS Registry - is the first global patient registry dedicated to understanding and addressing the long-term impacts of perinatal invasive Group B Streptococcus (iGBS) disease. It is designed to support families affected by perinatal iGBS disease while addressing gaps in our understanding through the collection and analysis of related data.
By participating, parents, caregivers, and children affected by iGBS disease can play a vital role in shaping better care, treatment, and support for families worldwide.
Together, we can make a difference for future generations.
What is iGBS?
Invasive Group B Streptococcus (iGBS) is a serious bacterial infection that can occur in newborns and infants, often leading to severe complications such as sepsis, pneumonia, or meningitis.
It poses significant health risks, including potential long-term effects on neurological development.
The COMPPASS Registry aims to collect comprehensive data from survivors and their families to better understand these impacts, support ongoing research, and improve healthcare strategies. By participating, families contribute to crucial advancements in treatment and care for those affected by iGBS.
Unlocking life-saving insights through
Patient Registries
Patient Registries are powerful tools for progress in healthcare that can capture insights from a variety of sources including patients, families, and health professionals over time.
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Information gathered through patient registries can unlock life-saving insights that can support the development of new therapies and improve the lives of patients and their families.
Why this Matters
Families affected by iGBS often face unique challenges, including managing neurodevelopmental impairments and accessing comprehensive care. The COMPPASS Registry was created to:
By contributing your experiences, you are helping researchers and healthcare providers create better solutions for managing iGBS and improving outcomes for children globally.
Why is the Registry assessing neurological development in your child?
Healthy neurological development is important to a child’s ability to learn, communicate, and develop motor and social skills. Difficulties in neurological development can impact the brain’s growth and functioning during early life.
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For children affected by invasive Group B Streptococcus (iGBS), neurodevelopmental impairments may include delays in reaching developmental milestones, learning disabilities, or behavioral challenges.
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Learn how early detection of impaired neurological development due to iGBS can significantly improve a child's long-term outcomes, enhancing the quality of life for affected children and their families.
What will participating in the Registry involve?
Participation in the COMPASS Registry as a Parent or Caregiver is as simple as:
01
Register
02
Consent
03
Complete Surveys
What are other ways I can contribute to the cause?
The COMPPASS Registry is open to individuals and groups passionate about improving care for children with iGBS. There are several ways you can contribute to improving outcomes for children affected by iGBS.
